First, I think any child with chronic medical issues deserves a medical home, and a person-- be it general pediatrician or subspecialist in developmental pediatrics-- to do the medical overview and 'holistic' medical care. I'm really glad to hear that Nico has such a person.
Second, I always worry about services through the school system after the age of 3. Most of the speech therapy and OT becomes 'indirect' therapy rather than one on one interactions, and the high caseloads carried by most PT/OT/Speech people who work for the school district makes it impossible to do more than the most cursory, "Well, he's not talking but he DOES have DS..."
A private therapist often has more time to think about the individual child instead of looking and saying, "Yep, DS." I strongly believe in using the private as well as public options here.
Third, every child with a chronic condition needs parents who pay attention and advocate for them. Not every child has this. I am delighted beyond words that Nico does-- and I love you guys in part because of how much you do for Nico, and what fantastic parents you are. (more next)
![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
no subject
Date: 2010-09-23 06:48 pm (UTC)Second, I always worry about services through the school system after the age of 3. Most of the speech therapy and OT becomes 'indirect' therapy rather than one on one interactions, and the high caseloads carried by most PT/OT/Speech people who work for the school district makes it impossible to do more than the most cursory, "Well, he's not talking but he DOES have DS..."
A private therapist often has more time to think about the individual child instead of looking and saying, "Yep, DS." I strongly believe in using the private as well as public options here.
Third, every child with a chronic condition needs parents who pay attention and advocate for them. Not every child has this. I am delighted beyond words that Nico does-- and I love you guys in part because of how much you do for Nico, and what fantastic parents you are. (more next)