lollardfish: (DS)
lollardfish ([personal profile] lollardfish) wrote2008-03-01 10:24 am

The Weight

I just had one of those intense emotional rushes that my son sometimes brings to me. My father, who saw Mavis Staples last night in St. Louis, sent me a youtube link to the Staples Singers and the Band playing "The Weight" for "The Last Waltz." Here's the video. It's worth watching, no matter how many times you've heard the song before.








Nico sat on my lap and watched it, transfixed. He'd turn his head to the speakers and back to the screen again, then do it again. Periodically he'd clap his hands or grab my hands in order to clap them together. My eyes teared up (they are, in fact, tearing up right now a little, just a little, as I write this). I think it was joy, joy at my son's engagement with this performance that means a lot to my father, and a lot to me as well (though differently). There's a kind of protective and adoring surge of love, frustrated only by the fact that Nico wants to bounce around and play, and only cuddle when he's sleepy. But also, as always when Nico does something wonderful, I suppose I feel some sadness and fear.

Earlier today, I got him to crawl across much of the apartment to get to me while I was sitting on the floor singing "The Fox" to him. It's one of the first two songs I remember, sung to me along with "Gypsy Davey" by my parents when I was 2 or 3 or so. The latter I remember being sung to me by my mother after I got sawdust in my eye at the "Egg Festival" one summer in Pittsfield, Maine (I think). Nico often makes sounds as I sing to him, sounds I interpret as singing along, and we do this together almost every day. He'll then reach out and pluck at strings with this particular "I'm concentrating" expression on his face.

I'd like to feel a little more free to dream about my son without so much fear - and ultimately it's fear for me, for my disappointment. Nico's happy and is likely going to stay happy. A year ago, roughly, I wrote about mourning - that I had to go through the process of mourning for someone who never existed except in my dreams, dreams that came to an end when the midwife told me of her concerns. Mostly, I think, I'm well adjusted to our reality, but sometimes it still comes back and hits me pretty hard. The fact that Shannon and I are quite broke (it's the higher gas prices, credit-card debt interest rates, and food prices that are eating into our minute margin for error each month) and that she's having her own emotional complications doesn't help. Nor does the fact that we really only get to be home together until 8:30 most mornings, between 1:30-2:00 in the afternoons, after 10:00 at night, and on Sunday. We usually get a Wednesday evening and a Saturday morning too, but not always. There are also some job pressures, mostly involving my scholarship.

Finally, my son is now on levothyroxine. Odds are that he'll take it every day for the rest of his life.

This was supposed to be an uplifting post, because despite the tears, watching The Weight with Nico was a very, very, bright shiny moment. But I also needed to write this out because Nico was refusing to listen. He has toes and monkeys to play with.

I'm really happy spring break started yesterday.

[identity profile] mizzlaurajean.livejournal.com 2008-03-01 05:08 pm (UTC)(link)
While different I certainly get the mourning for the dream of a child that will never exist.
I find it difficult to mourn for something that can't be yet the sense of loss is very real.

Though I'd love to find out I don't have to go there it seems so unlikely.

Enjoy your break! May it give you the recharge you need to push through the end of the school year.

[identity profile] born-to-me.livejournal.com 2008-03-01 07:48 pm (UTC)(link)
I think your Dad and I have a lot in common musically. Gypsy Davey (if it's the version I know well) is one of my favorite songs, and I hope someday to learn it well enough to sing in front of people (that would take someone playing for me, or me learning it on the autoharp, though). As for The Band? Oh, man. Last Waltz is one of my favorite all time albums. The Staples? Bliss. This video? Thank you, thank you. I'm going to download it and put it on my iPod.

I read all your posts about Nico multiple times and I feel them in my heart in a way I can't really express in words. I appreciate what you write very much, and I think so much of what you say speaks to parenting *every* child, on one level or another. Thank you.

[identity profile] lollardfish.livejournal.com 2008-03-01 08:06 pm (UTC)(link)
G.'s talking now, yes? Was that what I read somewhere? I think I've a babysitter for him one night at Applecon, btw.

[identity profile] born-to-me.livejournal.com 2008-03-01 08:10 pm (UTC)(link)
His speech gains regularly, but it's still probably not where the books say he should be. I know the initial delay was related to his eyesight, at least partially. He's always *communicated* well, but there are a few things he's taking his time with (like speech & potty training).

And Yay! We still have to make the financial decisions about cons, but that will definitely help us decide. Thank you!

[identity profile] sleigh.livejournal.com 2008-03-01 08:14 pm (UTC)(link)
Your words make me want to reply, but I find I don't quite know what to say. Everything seems inadequate. I want to tell you that I sympathize with the money issues (they're all too present lately for Denise and me, as well), and that Nico is a wonderful child and your love for him comes through so much, and that I teared up reading this post, and that the next time I play "The Weight" (which both bands play), I'll be thinking about your post, and...

[identity profile] lollardfish.livejournal.com 2008-03-01 08:26 pm (UTC)(link)
Thanks.

[identity profile] creidylad.livejournal.com 2008-03-01 11:21 pm (UTC)(link)
The Fox is one of my favoritest songs for kids ever. That and "Leatherwing Bat". It's so amazing we live in an age when we can compensate for low thyroid production with drugs -- I know a few lot of adults who live on these drugs (most have survived/beaten thyroid cancer) and the difference for them is amazing.

[identity profile] lollardfish.livejournal.com 2008-03-02 12:13 am (UTC)(link)
Yeah, we also know adults who take thyroxine every day. It is amazing. I am grateful for modern medicine so often.

[identity profile] lollardfish.livejournal.com 2008-03-02 12:13 am (UTC)(link)
And I should learn Leatherwing Bat. I know it, I just don't know it.

[identity profile] creidylad.livejournal.com 2008-03-02 04:13 pm (UTC)(link)
My father sings a version I adore much more than the Peter, Paul and Mary version, but their version will do as well. They corrupted the traditional melody a bit when they rearranged the song, which was typical of them in that period (I think in their quest for copyrights) -- I don't mind it, but I can't find recordings of the older version anymore.

[identity profile] lollardfish.livejournal.com 2008-03-02 04:19 pm (UTC)(link)
I have some other versions. One by ... Clishmaclaven (sp?) on an old tape, and Spider John Koerner (local guy) on itunes.

[identity profile] thickie.livejournal.com 2008-03-02 01:51 pm (UTC)(link)
You will most likely never stop mourning the dreams, much the same way my a) aunt and b) my mother's friend never stopped mourning their children that were a) killed by a car while on a bicycle and b) died of a genetic disorder. But the mourning changes over time, sometimes it's stronger and more prevalent and sometimes not top-of-mind at all.

You say you're well adjusted to your reality, and it certainly seems to be that way. Try not to dwell on what could have been, because you seem to be having WAY too much fun enjoying what is.

[identity profile] lollardfish.livejournal.com 2008-03-02 04:19 pm (UTC)(link)
I don't think I dwell too much, but I also don't want to deny its reality, which would be equally unhealthy. Instead, I try to face my emotions and write them out, then move forward. Or sideways. Or something.

[identity profile] thickie.livejournal.com 2008-03-02 04:38 pm (UTC)(link)
I don't think you dwell too much either. Mind you, I never see you.

You're 100% right, in that denying the existence of the emotion would REALLY be unhealthy.

[identity profile] lollardfish.livejournal.com 2008-03-02 04:40 pm (UTC)(link)
There is a "deny DS is a disability" voice in the community, and I get it. But it turns out, I think, to assign meaning to accomplishment - whereas I think the meaning is just in existence, not in accomplishment.

I'm not sure that makes sense.
erik: A Chibi-style cartoon of me! (Default)

[personal profile] erik 2008-03-03 01:13 am (UTC)(link)
I would like to be spending more (that is to say "any") time with you guys. I sort of feel like I've fallen down; I welcomed you to the city, and you haven't seen me since.

I mention this now because I know that if I were in your situation, isolation would not be a help.

[identity profile] madtruk.livejournal.com 2008-03-03 04:27 pm (UTC)(link)
I don't know if you noticed, but I was happier to find that Nico was awake to play with than you ;-). Seriously, following my own Illusions-laden philosophy, you're doing what you need to do, and there's not going to be a right way or a wrong way, just a good way and a bad way. Keep doing things the good way, and you'll always know you're doing your best. Wow, that's a bit naive, I suppose, but I like shiny objects, too.

"In fatherhood, the days are long and the years are short." - Bill Cosby