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[personal profile] lollardfish
The food issues with Nico have hit a crisis point. It's very upsetting and we're seeking professional help.

This is the first time I've felt completely helpless in regards to Nico in a long time.

Date: 2009-03-24 07:34 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
Yes. We essentially are down to yoghurt, pretzels, some fruit, oatmeal, and cookies. It's entirely behavioral (we think) as we have food both hard and soft (so its not texture issues), salty and sweet.

But there's basically no food left. It's completely erratic. And he's whining whenever confronted by any other food.

And it's not even reliably the sweets. Peaches - gone. Pears - gone. Bananas - gone. Grapes were good for 4 minutes today, then gone.

And I'm not handling it well on the inside, though I am laboring to handle it well on the outside.

Date: 2009-03-24 07:42 pm (UTC)
From: [identity profile] minnehaha.livejournal.com
I am sorry this is stressful for you! I expect that he'll come out of this period resuming his interest in old favorites, just as nearly all toddlers do. When Sharon commented a while back to the effect that by the time they're 4 all they eat is mac and cheese, she was being accurate.

It is upsetting, but it is also normal. Have you googled "toddler eating preferences" or similar?

K.

Date: 2009-03-24 07:49 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
We have done a lot of internet research, Shannon's read various books, and today we talked to our developmental therapist (we've been talking to her all along, of course), and she's going to get us into a food therapy group/program.

The question is what is normal and what is exacerbated by his delayed levels of expressive and receptive communication? Or, is there in fact some kind of extremely minor sensory issue (sensory issues are entirely typical of down syndrome) that we haven't diagnosed? Does he understand what we're saying? Is he communicating but we're missing it? Is it just him wanting candy? And it's rapidly deteriorating.

Date: 2009-03-24 07:49 pm (UTC)
From: [identity profile] cakmpls.livejournal.com
I've rewritten this comment about five times, trying for the right balance of not appearing to trivialize your concerns, being supportive, and assuring you that he isn't starving. I haven't hit it, so please take this as being what I've just outlined.

It isn't unusual for kids to go through periods of wanting only 5 foods, or 3 or even 1, and refusing any others even if they're hungry. The few things Nico will still eat offer more balance than what some kids pick. I don't think anyone knows what causes this. My own theory is that it's a way of exploring their control--or lack of it--over their environment, but what do I know?

Date: 2009-03-24 07:59 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
It's a reasonable theory. How to respond to it, though, is still unclear. Ignore? Only give the things he wants? Never give the things he wants? Give the things he wants sometimes? Offer him three things and then end the meal when he rejects? Offer him everything until he eats something? the options are infinite and none are satisfying.

Date: 2009-03-24 08:10 pm (UTC)
From: [identity profile] cakmpls.livejournal.com
Does he communicate what he wants at all? I see you mention above the possibility that you're missing it, but are you seeing any communication of wants?

If it were me--and that's what I mean, not "if I were you"--I would give him anything he asked for (if it's candy or something like that, a tiny bit; if it's something healthy, a good portion), and along with it, offer other things. I would try my best not to communicate that it mattered to me in the least what he ate or didn't eat. I would let him see me eating things he refused, and I would make "yummy" signs about it. (Surely there's a "yummy" sign?!?!?)

Date: 2009-03-24 08:27 pm (UTC)
From: [identity profile] minnehaha.livejournal.com
I would do these things too. I'd also offer several kinds of food at every meal, and if he rejects all, so be it.

K.

Date: 2009-03-24 08:30 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
For how many days? If you knew he was eating, say, only oatmeal, would you present oatmeal with every meal? Every other meal? One meal a day?

If you knew that presenting yoghurt or graham crackers would mean he absolutely would not eat anything else in that session, would you present yoghurt or graham crackers every meal? Every other meal? Only after eating something else?

These are the kinds of questions in which we are lost.

Date: 2009-03-24 08:42 pm (UTC)
From: [identity profile] minnehaha.livejournal.com
Well, I'd offer a little bit of the things we had in the house that I think he will like, whether that's bananas or noodles or whatever, a few choices, so that he can select them if he wants to. And then I'd go down the list towards what he's known to eat reliably. This would end up with him being offered oatmeal, yogurt, or graham crackers at every meal, clearly.

I would be very mindful of avoiding thinking, "he's just outwaiting me on the Brussels sprouts because he knows I'll give him the graham crackers eventually." I am aware of food struggles in families where the children are almost all grown and I would wish so much for that path to be one your family does not take.

K.

Date: 2009-03-24 08:46 pm (UTC)
From: [identity profile] cakmpls.livejournal.com
Oh, I am soooooo with K. on that last sentence!!!

Date: 2009-03-24 08:46 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
Yeah.

I'm stressed both about dinner in an hour and dinner in four years, at the same time.

It's dis-pleasant.

I don't know how to not think such thoughts when they seem so evidently true. I try to de-emphasize each meal time and just set him down with smiles and music (not so much today because of the 9 hours of whining).

It will be interesting to see how he handles Laura over the next week, since a lot of the problem is presumably contained in our parental-child dynamic.

Date: 2009-03-24 08:56 pm (UTC)
From: [identity profile] minnehaha.livejournal.com
It would help me to avoid such thoughts by replacing them with, "this is how we're handling this phase as he grows up" and "if he is choosing his own foods, that's a step forward," and "I better wipe up that oatmeal before it hardens into a crust that's tougher than cement."

Plus thinking about the excellent meal of my own I'll be having after I'm done feeding him.

K.

Date: 2009-03-24 09:00 pm (UTC)

Date: 2009-03-24 08:45 pm (UTC)
From: [identity profile] cakmpls.livejournal.com
I suspect that a person could live healthily for quite a long time on oatmeal, yoghurt, and graham crackers.

Here's one important thing parents have to learn to accept: short of becoming abusive, a parent cannot force a child to eat. It can't be done.

Date: 2009-03-24 08:47 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
Yeah. That was a hard transition from infancy (where you could, eventually, just get a taste on his lips and convince him it was time to eat) to toddlerhood.

Date: 2009-03-24 08:28 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
He does say yes or no. One way to solve the problem is to present him with every possible food item until he signs yes. OTOH, that conflicts with one strong set of parenting advice (see Sharon's comment below. She's right, that's usual). The communications, though, are REALLY clear. What they aren't are nouns (items of food) that would communicate need and allow us to communicate back (three bites of chicken, then cookie) in the usual parent way, although I've been trying to create that vocabulary.

We've certainly tried things along with your method. He usually enjoys feeding me his dinner, although today it's been crying at the sight of the food he doesn't want, then all smiles and beaming. It's a manipulation, but again, knowing that doesn't make the response clear.

Date: 2009-03-24 08:40 pm (UTC)
From: [identity profile] cakmpls.livejournal.com
Well, Sharon says "healthy choices only," and I said "a tiny bit" of candy or such if that's what he wants--I don't think these are too far apart, and you could go either way.

But it looks to me as if K., Sharon, and I are saying pretty much the same things, and that's an awful lot of parenting years there.

Date: 2009-03-24 08:17 pm (UTC)
From: [identity profile] dreamshark.livejournal.com
Is he losing weight, or otherwise showing signs of being undernourished? If so, then you might indeed have a problem. I hope that your food therapist will be able to help you determine first whether this truly is a problem in terms of his nutrition, or just a difficult interaction between parent and child.

The usual advice for kids going through a picky period is to offer them only healthy choices (no candy, etc.) for a fixed period of time, take away whatever they don't eat, and not make a big deal about it. The foods that he is willing to eat sound pretty healthy except for the cookies.

Is he drinking milk? That's a significant source of calories and nutrition of course, so if he drinks milk that's good. But it is also possible that he is drinking too much milk or juice, which is depressing his appetite for other foods.

Date: 2009-03-24 08:26 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
Whether or not the usual advice applies is a subject we are not qualified to answer at this point, but are working on it. Also, there is mutually conflicting advice out there, as in all things related to child-rearing.

He is not, yet, undernourished.

It is not an over-abundance of milk/juice issue. Or, indeed, an appetite issue. He'll be ravenous and sit there crying because it's not the food he wants (even though it's food he's eaten before).

Sigh.

Date: 2009-03-24 08:29 pm (UTC)
From: [identity profile] minnehaha.livejournal.com
Not trying to be smarter than you about your dear little boy, and most kindly meant: How do you know he's ravenous?

K.

Date: 2009-03-24 08:31 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
I know all of you are working to be helpful! :)

He signs "eat" with great intent and repetition, cries, then signs eat again.

Also, he didn't really eat yesterday afternoon or evening, then slept through the night, and woke up hungry.

Date: 2009-03-24 08:59 pm (UTC)
From: [identity profile] minnehaha.livejournal.com
When he cries, is that at an offered food that he then doesn't eat?

K.

Date: 2009-03-24 09:00 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
In this case. The crying at food on sight is a new level of dysfunction just appearing. It's presumably a sign we're creating greater stress in the situation.

Date: 2009-03-24 09:07 pm (UTC)
From: [identity profile] minnehaha.livejournal.com
That's pretty fraught for you. Does he get to help choose what he's offered? Hold him while browsing fridge or pantry, so he can see what there is?

K.

Date: 2009-03-24 09:10 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
I've been thinking about that. It's also been recommended to have him help "make" it, which I've tried, but it hasn't really made a difference. He does like pushing buttons though.

Date: 2009-03-24 10:15 pm (UTC)
From: [identity profile] minnehaha.livejournal.com
Henry likes to see what's in the fridge, is why I thought of it. Nico could certainly push a few microwave buttons before meal time, even if not heating up something!

K.

Date: 2009-03-24 08:41 pm (UTC)
From: [identity profile] cakmpls.livejournal.com
And even the cookies might be pretty healthy, depending on ingredients. "Cookie" covers a lot of territory (or can be made to do so!).

Date: 2009-03-24 09:19 pm (UTC)
ext_73228: Headshot of Geri Sullivan, cropped from Ultraman Hugo pix (Default)
From: [identity profile] gerisullivan.livejournal.com
There are even Breakfast Cookies. Complete with bacon!

Yes, I know. That's not the point about what's going on right now. On the non-bacon front, good for you for getting help in figuring out how to deal with this aspect of Nico's toddlerhood. And yes, it sounds like [livejournal.com profile] mizzlaurajean's visit is very timely in that it will give you more information on this.

Good luck, and may more enjoyable mealtimes soon be yours!

Date: 2009-03-24 09:24 pm (UTC)
From: [identity profile] buttonlass.livejournal.com
The cookies in question are fig newtons and blueberry newtons. Not so bad in comparison to chocolate chip.
(deleted comment)

Date: 2009-03-31 08:42 pm (UTC)
From: [identity profile] lollardfish.livejournal.com
This is what all parents say, and I believe them. Yet it's so hard and I'm not sure why. I think it might be because of the overall, grand scheme, communication issues, of which this becomes a particularly problematic example.

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